200K
People with Sickle Cell Disease
$90K+
Provided for the less fortunate
5
Nationwide
Events
per Year
10+
Years of Service
WHAT WE DO
Our annual Sickle Cell Disease 5K Fun Run and Walk and Junior Claus is an opportunity for patients and families of those with sickle cell disease to gather and learn more about new updates in sickle cell disease treatments and to spread awareness and increase community engagement.
We will have raffles, games, music, giveaways, and fun activities for kids.
Additionally, we will have sessions and panel discussions on the following topics:
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New medications for sickle cell disease
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Bone marrow transplant and gene therapy
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New areas of research in sickle cell disease
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Transfusion medicine
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Pain management, including complementary and alternative therapies
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Navigating the school system as a student or parent of a child with sickle cell disease
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Blood Drive and Blood Donation
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