What is Sickle Cell?
Sickle Cell Disease (SCD) is a group of inherited blood disorders that affects the red blood cells in the body. These disorders are characterized by the presence of abnormal hemoglobin molecules, which cause the red blood cells to take on a crescent or "sickle" shape instead of their normal disc-like shape. This change in shape can lead to various complications as the sickle cells can block blood vessels, impairing the flow of oxygen and nutrients to different parts of the body.
Sickle cell disease (SCD) affects millions of people throughout the world and is particularly common among those whose ancestors came from sub-Saharan Africa; Spanish-speaking regions in the Western Hemisphere (South America, the Caribbean, and Central America); Saudi Arabia; India; and Mediterranean countries such as Turkey, Greece, and Italy. Sickle cell disease affects millions of people worldwide. It is most common among people whose ancestors come from Africa; Mediterranean countries such as Greece, Turkey, and Italy; the Arabian Peninsula; India; and Spanish-speaking regions in South America, Central America, and parts of the Caribbean.
Sickle Cell Disease is the most common inherited blood disorder in the United States, affecting 100,000 Americans. The disease is estimated to occur among about 1 out of every 365 Black or African-American births,1 out of every 16,300 Hispanic-American births. 3 out of every 1,000 babies that are Caucasian are born with the trait. 2.2 out of every 1,000 babies that are Asian or Pacific Islander are born with the trait, and sickle cell trait occurs among about 1 in 12 Blacks or African Americans.
At Kier's Hope, we are dedicated to providing support, education, and resources to individuals and families affected by Sickle Cell Disease. Our mission is to raise awareness about the condition, promote early diagnosis, and advocate for improved medical care and research. Through our efforts, we aim to enhance the lives of those living with Sickle Cell Disease and ultimately contribute to advancements in treatment and finding a cure. If you or a loved one are impacted by SCD, we're here to offer a helping hand, a listening ear, and a community of understanding individuals who are here to make a difference.
SICKLE CELL CHALLENGES
Sickle Cell patients frequently experience an episode of severe pain, known as crisis. These painful episodes can occur suddenly and unpredictably, often requiring hospitalization and medical intervention.
Limited Treatment Options
Despite advancements in medical research, there is currently no widely available cure for Sickle Cell Disease. Treatment options primarily focus on managing symptoms and preventing complications, leaving patients with limited options to address the root cause of the condition.
Health Disparities & Access to Care
Sickle Cell Disease disproportionately affects communities of color. Many patients face disparities in access to healthcare, including specialized treatment centers, medications, and comprehensive care.
Emotional and Psychological Impact
Living with a chronic illness like SCD can take a toll on mental health. Patients may grapple with feelings of isolation, anxiety, and depression due to the challenges and uncertainties associated with the disease.
Limited Public Awareness and Funding
Sickle Cell Disease often struggles for public awareness and research funding compared to other conditions. This lack of attention can hinder research advancements, making it more difficult to develop effective treatments and ultimately find a cure.
At Kier's Hope, we work closely with a range of partners to provide the best possible care and support to those suffering from Sickle Cell Disease. Our partners include medical professionals, researchers, and other non-profit organizations. Together, we are committed to improving the lives of those affected by this disease and finding new ways to help them manage their illness.